"As a healthy couple in their mid-20s, Bill and Victoria Strong's last concern when shopping for health insurance was a cap on lifetime benefits. Then Gwendolyn was born, and six months later was found to have spinal muscular atrophy Type I, a degenerative condition that typically kills its victims before age 2."
"The paradox was that each day of extended life for Gwendolyn brought the Strongs closer to the precipice. 'I want my daughter to survive,' Mr. Strong said. 'But nobody wants to have the threat of complete bankruptcy looming over their head. It's just kind of inhumane the way the world works in these brutal situations.' "



